Why I Don't "Fight" Cancer - Part 1

Why I Don't "Fight" Cancer - Part 1

I don't know about you, but I don't identify with much of the militaristic language surrounding cancer, most especially The *War* on Cancer.  That being said, I totally get that we're all so different. If being a fighter and kicking cancer's ass works for you, great! Keep it up! Disregard this post.

If, on the other hand, you haven't really found yourself embracing the imagery of a life on a battlefield, I just want to say, "You're not alone. Me neither." I like using the term "cancer thriver" and the image of being on a "journey" instead...

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My Risk Factors & Dense Breasts

My Risk Factors & Dense Breasts

I had pretty much no risk factors for developing invasive breast cancer.

I used 2 online Risk Calculators (see below) to determine my risk of developing breast cancer when I was given the diagnosis at the age of 35. One risk calculator said that I had a 98.75% of remaining breast cancer-free for the next 10 years (until age 45). And the other risk calculator said...

...

"Women with dense and extremely dense breasts have a modestly increased risk of breast cancer and experience reduced sensitivity of mammography to detect breast cancer." (American College of Obstetricians and Gynecologists)

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If I Gave a TED Talk... take 1

If I Gave a TED Talk... take 1

We all fear it. The C word. And then on June 1, 2015 when I was 35 years old the C word happened to me: aggressive breast cancer. Then it began... the chaotic, confusing, panic-filled storm of decision-making. How do we make these decisions? What’s the best way to discover the path we're meant to take? I want to share the ideas that have worked for me and what I’ve learned along the way. I feel that our society and most doctors do not give us the tools to confidently make quick, life-altering decisions when we are drowning in fear.

I courageously looked fear in the face...

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Could Declining Chemo Be Evidence-Based?

Could Declining Chemo Be Evidence-Based?

"When a patient chooses a form of therapy out of conviction, while accepting the fact that death is inevitable someday, that patient will never be a failure and never regret the decision." Love, Medicine and Miracles: Lessons Learned about Self-Healing from a Surgeon's Experience with Exceptional Patients by Dr. Bernie Siegel, MD

I often felt that when I told my doctors that I had decided to decline chemotherapy, they heard me say, "I'm going to do nothing to prevent cancer from coming back. Literally nothing." When quite the opposite was true...

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First, Do No Harm

First, Do No Harm

UGH. Why??? Why was I put through this pointless emotional down and up yet again yesterday? Why??? What purpose does it serve me or the medical establishment to make each step start with PANIC instead of PEACE?! Let's assume everything is healthy and benign until proven otherwise... not -- let's assume there is scary cancer everywhere all of the time and cross our fingers you luck out and we don't find anything.....

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I'm back from my 2nd treatment in Germany...

I'm back from my 2nd treatment in Germany...

Wow. Where do I even begin? So much has happened in the 6 weeks since I last wrote an update; therefore, this will probably end up being a bit on the very long-ish side (…like almost 2,800 words on the long-ish side). The weeks I spent at Hufeland Klinik in Germany were just as magical as they were last year. Before I left I thought, “Am I hyping this place up too much? Am I going to be disappointed?” Not.In.The.Least! I flew back to Philadelphia on Tuesday, June 22, 2016 and... 

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This time next week...

I'll be in Germany!

In case you haven't heard it through the grapevine... this time next week I'll be at the Hufeland Klinik in Germany for another 4 weeks of alternative cancer treatment. I'm really excited to go!

I most recently met with my oncologist in April and all of my lab work continues to look good. Based on that, my all-clear PET/CT scan results, and alternative cancer testing results, the doctors I work with at Hufeland recommended that I come back for 4 weeks of treatment... so I'm following their advice. I'll be receiving treatment there from...

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Art that I Made that Made Itself

Art that I Made that Made Itself

It was the Fall of 2013 and I just felt FRANTIC. The church that we go to, Highlands Church, has a Be Still contemplative prayer service most Wednesday evenings. This evening, we had the opportunity to do art. I took a piece of paper and scribbled with watercolor crayons. Then I sprayed it. Then I thought, "Crap! There's too much water!" So I took another piece of paper, ...

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Newly Diagnosed with Cancer? 5 Things I Wish I Had Known...

Newly Diagnosed with Cancer? 5 Things I Wish I Had Known...

If I have 10 minutes with someone newly diagnosed with cancer and they’re interested in more than just what their M.D. can offer them, then these are the 5 things I would talk about in the midst of the frantic chaos that they are most likely experiencing...

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Home for almost 6 weeks...

The transition home has been... hard.

This "figuring-out-how-we-do-life-now" has been a rough transition. From June 1 to October 6 was a whirlwind and we're just now coming up for air and seeing what happened around us. In addition, there's also the ever-demanding, hum-drum naggings of doing life... cleaning out the remnants of a mouse's party in our pantry, wading through medical bills, figuring out a new insurance plan as mine is discontinued, and establishing new routines... but we're getting there! ...

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We're back!

I feel a bit like a broken record, but thank you for all of the prayers and many ways of support you all continue to give to Josh and me. (And no, it’s not “Josh and I,” in case you were wondering… I graduated with an English degree… which does come in handy, Dad! See?!) 

Here are answers to the Top Ten Frequently Asked Questions (FAQs) we’ve gotten since we returned:

1. Are you happy to be home?

Yes… and no. Of course we love seeing our family and friends, but reverse culture shock and other things have made it difficult...

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How I make it through Fever Therapy...

How I make it through Fever Therapy...

Tomorrow... Monday, September 21, 2015, will be the 4th and final Fever Therapy I receive in Germany for this round of treatments. I know so many of you are praying for me, and Josh and I are continually laying my entire being and experience at Jesus' feet, and so I wanted to let you know about some of the tangible things that have helped me get through each day and the challenging treatments here. 

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Praises!

Praises!

So for months I've been asking for prayers... this is the non-exhaustive list of answered prayers that Josh and I have come up with...

  1. My immune system has responded extremely well to the Fever Therapies here... my white blood cell count is over 26,000!
  2. I've gained 7 wonderful pounds... and let me tell you, this takes A LOT of chewing... chomp, chomp, chomp of the vegetables!
  3. ...
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A Day in the Life...

A Day in the Life...

A typical day here looks like me going down to the basement to get Kneipp Therapy... very warm water on my legs, then very cold water on my legs... it's supposed to stimulate and support the immune system. Then we have breakfast and on Monday, Wednesday, and Friday I go to the Infusion Room for an IV (detoxification or liver support or vitamins) and on Mondays and Fridays I also get Ozone Therapy (they take 100ml of blood, add ozone, and then give it back to me). On Tuesday mornings I've been getting the Fever Therapy IV and on Thursday mornings (and the rest of the afternoons) I have relaxing treatments in the basement such as Biofeedback, Brain Light, AHT (Auto Hormone Therapy), Lymphatic Massage, Magnet Therapy, Liver & Spleen Electrotherapy, and Reflexology... 

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The "Whatever" Prayer

The "Whatever" Prayer

If you would like to join us in starting the prayer this week, we will be praying for Colleen’s bodily systems that have been“fearfully and wonderfully made.” Obviously you can use your own words, but this may give you an idea...

Lord Jesus, we lift your daughter Colleen and her body up to You and we ask that, in the best possible way, You will orchestrate whatever changes need to take place within her DNA, cells, tissues, organs, immune system, digestive system, lymphatic system, cardiovascular system, skeletal system, muscular system, nervous system, respiratory system, endocrine system, reproductive system, chakras, energy fields, mind, heart, soul, and spirit. We ask this in your Holy name. Amen...

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Food in Germany

Food in Germany

So far all of the food we have eaten here has been at the Hufeland Klinik... and oh... my... goodness is it good! Imagine having the best quality food prepared excellently for you and then served beautifully... then times that by 10 :)  Seriously, as someone who has avoided dairy (milk products like cheese, butter, cream, etc) for years, it’s refreshing to see how easily they can accommodate my dietary restrictions...

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We're in Germany!

We're in Germany!

Our favorite thing so far is being able to amble across the road from the Klinik into a park that has every fabulous thing that we have ever seen at a park before, all in one big tree-filled park: river complete with paddle boat rentals (check), life size chess boards complete with old men serious about the game (check), fountains and water show choreographed to music (check), music stage (check), apple and pear trees (check), beautiful rose garden (check), exercise circuit with some strange thing that makes you "moon walk" (check), built in playground musical instruments (check) and our favorite a simple walking labyrinth (check). And just past the park you walk through an old castle gate into a fantastic little town with cobble stone streets, old churches, and lots of boutiques and cafes...

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